Update on Sparrow

Thank you all for your prayers! We are indeed blessed. Sparrow is doing well. She has been seizure free since Saturday!! Her EEG was normal, as was expected. She had a busy day yesterday with tests and seeing her Neurologist. She will have an MRI in July and we'll get the results later that month. Before you call me worrying that it's too far away, let me assure you... It's okay to be scheduled that far in advance. It gives Sparrow a chance to adjust to her medicine, get over any residual effects from the seizures and Husband has off the day of the MRI. It's not a fun test for her or for Mom and Dad to watch so it's best that it's a 2 parent day without Husband missing more work.  It also gives her brain that many more days to build up the fatty brain tissue that makes an MRI clearer and therefore more accurate to read. Sparrow has some great Dr's and specialists who work for her and we're really thankful for that. We are just taking it easy today and trying to catch up on sleep and establish a new routine. She is taking a nap as I am typing this. She is quite wobbly and falls more often. She is mouthing her hands and staring. She is much more hyper before crashing to sleep, just generally more moody. She is normally such a mellow little girl that her behavior now is probably more typical of the average toddler. These changes could simply be after effects of the seizures or they could be side effects of the medication. Either way they will most likely resolve with in a few weeks time.
For those of you who are questioning my parenting skills in reference to putting this "sensitive" material on the Internet...I am doing this for several reasons. My family is scattered all over the country and my friends are spread throughout the world so instead of taking precious time away from Sparrow by explaining the same thing multiple times, everyone can be aware and updated quickly and without taking time away from her. It's also very good for me to document everything that she does before the memory fades, it's better for the Dr's that way - a great example of this is that we didn't see her neurologist until yesterday and since I had all the details here, I didn't have to question whether my sleep deprived, information overloaded, adrenaline saturated brain remembered every detail because it was right here. Finally, I know that other mom's may someday suffer through this with their little ones and they may need to see that it's not anything to be ashamed of, and that they are not alone. If you are that mom then you need to know to trust God in this. None of it is a mystery to Him. Run to Him for comfort and seek Him in prayer and in His word. I've taken some time and prayed for you, your children and your medical team, so you've already got at least one person praying for you. It really helped me to get on YouTube and watch other babies have tonic clonic seizures, you get an idea of what's "normal".
Thanks again everyone, I'll post anything new that happens in the mean time  - walk with God.