She has been a little constipated so when I got up (10am) he went to get some apple juice at the store. while he was gone I called my mom and Sparrow 'talked' to her. I then gave her about 5 baby spoonfuls of yogurt and another 2-3 of applesauce. I returned a call to my friend and while talking to her Sparrow (she was seated on the floor) fell over slowly onto her back. I ran to her but she had rolled to her side and was having a tonic-clonic seizure. It seemed like she would throw up so I picked her up and held her face down. She was still seizing. She threw up, when she was finished I laid her down and just gave her room, at this point I hung up on my friend (I had thrown the phone to the floor but not hung it up. This was an “old fashioned” landline), called Husband and told him to come home, and called 911. I had them on the line and she was beginning to relax. She turned blue, I carried her closer to the sofa so I had more light. I was still on with 911. She began to get more pink and eventually they hung up. 911 called back almost immediately and said they were 60 seconds away. Husband came in then and said they were outside. I took her out to them, she was asleep and really hard to arouse. She was fully awake when we got to the ER but still slow, clingy to anyone that held her.
No fever, no signs of infection. Blood tests were normal. They gave her iv fluids as a precaution. She signed that she was hungry so I gave her 2 packs of graham crackers and a little apple juice. One of the Dr's came in and asked how she was. I relayed what she had eaten. He asked if she had anymore episodes, I looked down at her and she was starting to seize, she threw up then turned blue same as the first time. Our neurologist office on call Dr told them to start her on keppra. They admitted us and the on call neuro will see us tonight or tomorrow. The general Dr for the peds unit said that most likely they will find the minimal amount of the keppra that works and keep her on it for 3-6 months, then try to see if she can be without it. Oh, her O2 sats would drop when they tried her on room air so she was on 1 liter of O2 for a while but that's all stable now and she is keeping her oxygen up on just room air.
My cousin T. is driving up tomorrow to be with us so that's a comfort. I'll update as we go along.
| as of 7am she is sleeping peacefully in the hosp crib surrounded by a seizure bumper - looks like baby jail! |
| sorry this is blurry. top # is her heart rate, middle # is her sao2's, bottom is respiratory rate. (all stable now!) |
Oh, I forgot to add... from what I've read the word epilepsy (which was used by one of the Dr.'s)
ReplyDeleteIs used anytime that a seizure is not caused by a fever or infection.
Heather my prayers are with you and the baby. I have many members of my family that have epilepsy for no apparent reason. I pray that she is doing better and that you can bring her home soon. Love you and miss you wish you where here so that I could help you out with everything.
ReplyDeletelove ya holly
I also realized as I read this that it looks like I continued to talk to my bff on the phone. I had not, I throw the phone down but never hung it up. Knowing that something had gone terribly wrong Maureen stayed on teh line in case I needed her. Also, I didn't call 911 straight away because I was a nurse, I am no stranger to seizures.
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