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Monday, January 24, 2011

The hard stuff of Hypotonia

   I sometimes become bogged down in the hard stuff of life. Don't we all? I spent the weekend feeling like an awful mother because of Sparrow’s needs. You see, I get these obscure explanations about her needs. The "why's" and "how much's" are never explained to me in a way that I can still agree with them after the person who is here to help, leaves. Don't all babies walk on their toes? Aren't all babies flat footed? Why does she need a Developmental Therapist? How far behind is she? What happens after she turns 3 and we are out of the program? How horrible of a mother am I when she needs a therapist to help her with every part of her life? Oh, the accusations. Are they pushing her to hard? Would I be selfish and cruel to her if I refuse the care that trained professionals tell me she needs? Can you hear my heart breaking?
   There are no answers to some of my questions. Even her diagnosis is vague. Even though I can see the results of it for myself. But this I have - I have a God who knows no puzzle or mystery. He knows no confusion or vagueness. He knows all of Adelaide. He knows her smile and her DNA. He loves her! He loves me. In Him I will place my trust. In His careful hands I will place my precious daughter. I ask Him to confound their efforts if they have alterior motives. I ask Him to heal her pain. I ask Him to bless her life, to make her His own. I ask Him for wisdom in raising her to be the woman He wants her to be. Ya know what? He answers me. He answers me because He loves us. Because of His love for us I know I can trust Him. His love which He proved over 2000 years ago.

3 comments:

  1. Oh sweetie, what a beautiful post. You know I get the hypotonia issues and the questions, but your faith has deeper roots than mine. I admire and look up to you! You are my mommy hero of the day! You simple faith and trust in the Lord is hard for me to see, but I will learn from it and grow! Praying for you guys and if you ever need to reach out, you know where to find me :o) my cell number is listed on facebook :O)

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  2. Thank you Jess. I know you really do understand. May God bless you in an unexpected way today!

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  3. Not only does God know all of Adelaide, he knows exactly who will take the very best care of her... you! You are a perfect mom match for her.

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