Today it was feeding therapy ***M, she ate a Pringles stick for lunch!!***. Tomorrow is her second swallow study. We are hoping to find out that she is cleared to swallow thin liquids without choking (and that it's just our imagination that she is choking on the thick stuff). I am glad for the pediasure that I was originally hesitant to give her. It's keeping her alive and keeping the weight on.
Wednesday we go for a recheck to the Neurologist to make sure her tone isn't worsening and to find out why we are having some glitches. She is no longer tracking objects with her eyes and her tongue is deviating to the left when she sticks it out - which is often.
Thursday we have PT and she is getting fitted for her leg braces. I am told that they have cute colors/patterns to pick from. I haven't been able to make this OK in my head yet. Of all the things that have been difficult you wouldn't think this one would be that bad. But I flat out don't want her to need them, and I hate knowing that she does.
Praying Heather...I understand as you know all to well...and I am begging God to heal your daughter right along with mine :o)
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