I feel as if I'm blindfolded and riding a roller coaster. Just when I think she is improving someone with the education to know what to look for says there is a concern. Sparrow’s neurologist amazes me. He see's things so quickly, and notices things that I don't! I'm with her 24/7!!!! Her eye still tends to go to the left?? Let me see? My stars, it does! Once again I went in expecting to hear how I'm a worry wart first time mom. You see she had stopped tracking with her eyes (something a month old baby can do). She had stopped saying the words she could say at 6 months old. Most curiously she started sticking her tongue out to the left. I had all sorts of perfectly normal reasons why a child would do these things. Eyes - she's a torti baby, she just has to readjust to using her eyes now that her neck is straight, no problem PT is working with us on this. Speech, well of course she is working on other skills and doesn't need to practice those words she knows them already, normal! Tongue, well she is getting a new tooth so that is probably bothering her.
Even better, before her appt she started beginning to track again, she said "Jack" and "Mama" again. and sometimes she puts her tongue straight. Cool - it was a glitch now it's gone we are going forward....
But no he had to shock me and say sometimes when skills come and go it means there is something going on with the brain. Lets get an EEG. (I can hear a record being scratched like a movie sound effect- rewind, back up, what???) But I said she is better!
Am I dreaming? Wake up Me, wake up! I guess I really am awake.
Today is PT and her fitting for her leg braces. Husband and my cousin had a wrong pic of this in their head, think plastic velcro closure shoe-like things. Not Forrest Gump. Still, in my head it's a foreign object that I don't want her to need.
I trust God and I know that if these things help her in any way then I can be a good Mom and handle the fear and stress. But I don't have to like it. What do folks do who don't have God? I can't imagine trying to survive this without Him who is my comfort.
Amen and amen! I am praying the EEG will either put your mind at ease or will fully show what is going on in that little head of hers! I swear the NOT knowing is soo much harder than confronting what ever is going on head on! I pray the braces fit, work quickly, and that in the end you can find peace with them. Kinda like our noodle, I hate that thing, but it is her lifeline, so I love that thing! Praying for you, Mike, and Adelaide. Keep us posted Missy!
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