Movin on

Sorry it's been a while. So many wonderful things have happened! God healed whatever the Dr's suspected was wrong with Sparrow’s Chromosomes! I know that many nay-sayers would argue that there was nothing wrong in the first place, but how many of them are trained to recognize these types of problems and do they regularly reject God in other ways too? The next wonderful thing, Adelaide crawled on her hands and knees! This is so amazing when she has so little physical endurance. It is truly inspiring to watch. When Husband and I were still reeling from that wonder she did it again... she sat up, by herself. The very next day! That was one of the milestones she was behind on. What a relief!
Tuesday I was anxious about expecting  a  confrontation with the feeding therapist... God worked that out as well. The pediatrician called her and talked to her. Now things are going really well.
A little about her feeding...
Sparrow is having trouble eating. Her tone makes her reflux worse. It also makes getting the food into her mouth then swallowing it very difficult. You and I take it for granted to be able to pull food or drink into our mouth, move it to the back of our mouth and swallow it. Sparrow has to really work hard to do all these things, then she chokes on it once it goes down. When it finally goes down the right tube, it comes right back up and she has to deal with it again. It takes an awfully long time to straighten all this out. She has to learn so much and it's hard work. She needs the calories to have the energy to do all this learning and concentrating. Our strategy now is to skip the bottle and sippy cup, going straight to a regular open cup with thickened liquids. She is using a one ounce "nosey" cup. and a "maroon" spoon. Yep  it's a little odd for an 8 month old to eat like this, but Sparrow just doesn't fit the mold. I am learning to be OK with that. It's really hard going through this as her mom. Yesterday I wasn't able to get much in her try as I might, and she was hungry. Crying, chewing on her hands calling "mama, mama" with that whiny desperate cry of defeat. It's sad and you feel very guilty for not being able to do something so basic as feeding your child. Your child who has no idea why you aren't making it better. In the mean time you wait for people who don't understand to critique you and give you well meaning advice that is hurtful.
I am glad that I know God is in control and that all I have to do is trust and obey. Speaking of obeying...
I am always watching things on TV and the Internet that are disturbing. They bother me long after the viewing of them is over. Last night Husband finally outright forbid me to do it again. If I see something that I know will bother me I am to close the page or turn the TV off. I love submitting to his authority. He is doing this to protect me. Many people in this day and age wont understand that, they will get their hackles up. IMHO that is because it's been abused in their lives or they have seen other loved ones abused. Rest assured, that is not our case. Ours is in obedience to God, (Colo.3:18,19)Wives, submit to your own husbands, as is fitting in the Lord.Husbands, love your wives and do not be bitter toward them. And, (Eph 5:22-25) Wives, submit to your own husbands, as to the Lord. For the husband is head of the wife, as also Christ is head of the church; and He is the Savior of the body. Therefore, just as the church is subject to Christ, so let the wives be to their own husbands in everything. Husbands, love your wives, just as Christ also loved the church and gave Himself for her,... You are free to ask if Mike obeys his part too, the answer is a resounding Yes! We are still learning how to fit into our roles, we often fail. We keep going though. I guess I changed the subject.
Back to feeding Sparrow…I am keeping a log of everything she eats and her reactions. That way we know exactly what her caloric intake is and hopefully we can refine thickness, taste, temp... to fit her needs to best help her. Keep praying for us this is a marathon not a sprint. TY